Wonder Pets

We decided to place a feeding tube yesterday for Sully. We felt a great sense of relief that at least his little body could be hydrated but know we must balance his fluid intake with how much his heart can handle. After he took his first full ounce over a three hour period, we contendedly spent a lovely evening together as a family of five. We all piled on our bed and watched an episode of the Wonder Pets, crowded into the bathroom to brush teeth, read bedtime stories all together and sang Zane's favorite cowboy song to each other before kisses goodnight. It felt so good to have those moments together as a family, the five of us nestled in our little corner of the world, safe and happy.

Before the bedtime routine began, we sang Happy Birthday to Sully for the 4th day in a row. Ella asked us last night why we are singing to him everyday. Brad said that it was because we didn't know how long we would have him and that we wanted to celebrate each day we had with him. This morning in the shower I thought more about her question. I just wept as I thought of all the birthdays we would miss with him. And so, Ella, I sing each night in hopes that we can fill his days with a lifetime of birthday songs before he leaves us.